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East and Bays Courier : April 18th 2014
Auckland’s most powerful media NETWORK Unbeatable coverage of Friday, April 18, 2014 Big support: Dylan Schneider on his Segway surrounded by his mates from class four at Michael Park School. 808,000 readers 15+ Ph 09 525 0666 Source: Nielsen CMI Q3 2011–Q2 2012 Smooth operator: Dylan Schneider shows how it’s done on his Segway. DYLAN Schneider thinks nothing of getting around on two wheels at school. He uses a Segway, which makes life with muscular dystrophy much easier. Pupils at Michael Park School know Dylan and his futuristic form of transport well. They’re not usually allowed to have a turn, but last Friday was special. The school held a Wheels Day to raise money for Muscular Dystrohpy NZ and the children brought their skateboards, bikes and scooters. There were two extra Segways so that everyone could have a go. A course was set up on the school field so the kids could go zip around the cones. Dylan kicked things off by showing the others how it’s done. His teacher of three years, Fatemeh Abdollahi, has noticed a change in Dylan since he got his Segway. ‘‘He has more confidence and is more active,’’ she says. Dylan’s family applied to various trusts through CCS Disability Action to gain funding for the $8000 machine and received $7000. It’s a second-hand reconditioned model that came with off-road tyres and a long-range battery. One of Dylan’s favourite pastimes is walking the dog with his family. ‘‘Now he can conserve his energy on the Segway and expend it when he gets to his destination,’’ his father Michael Schneider says. ‘‘It offers the ability to join in with his friends and family and getting around without restriction because he gets so tired easily. ‘‘The family went to Bethells Beach with off-road tyres on the Segway and went for an hour and a half walk. It was fantastic. ‘‘If you can imagine you have bench-pressed kilos of weight all day, and you get sore jelly legs – if Dylan moves around too much in day that’s what he feels like every day.’’ Muscular dystrophy is a neuromuscular condition which is genetic and primarily results in muscle wastage. Symptoms can appear just after birth or for others not until much later in life. They are unpredictable and there is no cure. Dylan’s mother Debbie Schneider says the school has been great about the Segway and its students have formed a strong bond with her son. ❚ Visit mda.org.nz for more information. Heart conditions bring teens together By JESS LEE Honor Guysmith was dealt a tough hand the day she came into the world. The Parnell teenager was Tough start: Honor Guysmith is hoping to make it to this year’s Camp Teen Beat for teenagers with heart conditions. Photo: JESS LEE born two months premature with the congenital heart defect, tetralogy of fallot, which can reduce bloodflow to the lungs. Honor was just five months old when she had open-heart surgery. She spent the first six months of her life in hospital and has had to have regular check-ups ever since. But the 16-year-old will be scaling new heights at Camp Teen Beat at Long Bay on April 28. The annual event is run by charity @Heart for teenagers aged between 13 and 17 who are living with heart conditions. About 45 teenagers from across the country come together for a week of outdoor activities such as rafting and climbing. It’s a great chance to meet others like her, Honor says. ‘‘They can relate to you about it, which helps.’’ Nurses provide medical support throughout the week as part of the team of volunteers. Hannah Keatley, who volunteered last year, says the camp ensures young people with heart conditions never feel alone. ‘‘Heart teens get to feel just like their peers, scars and all, for this special week. ‘‘They are able to swim without wearing T-shirts covering their scars and talk to other teens who have gone through similar journeys.’’ The camp is free to attend, but it costs $600 to send just one teenager and the charity +FREE FUN Go to eastandbays courier.co.nz and click on Latest Edition to see a video of Camp Teen Beat. is struggling to cover costs. ❚ Go to givealittle.co.nz/ cause/CampTeenBeat to make a donation. Open Friday 3 Saturday 3 Sunday 3 Monday 3 NO CAFE SURCHARGE - ALL EASTER WEEKEND VISIT YOUR LOCAL KINGS TODAY PH: O800 PLANTS (752 687) www.kings.co.nz FOR THE KIDS Join our Easter Egg Hunt - and enter our “Emperor’s New Clothes”colouring competition. Specials end 30 April 2014 or while stocks last.
April 16th 2014